Here are a few of the articles I've read n an watched.
I am over joyed that we got picked for the prenatal surgery. I knew that we did the right thing for her from the start. I wanted to do what I could for her and well I guess what we did actually was the best thing.
The trial was closed early because the benefits were clear it helped with Mobility and brain function. We were told that from the MRI we had before we excepted to be part of the trial that CHarlotte's hindbrain herniation was quite severe. That was probably the clencher for me. That part scared me more then the possible need for a shunt. And because of the surgery before, I'm sure that hindbrain herniation has reversed. and for CHarlotte the SHunt was still needed. So the main scare in my book was gone. When she was born she was kicking her legs and wiggling her toes too. I was overjoyed.
We delivered at 36 weeks 4 days. We actually had our c-section scheduled. The gal right after us delivered at the same time a month later. So there are still those of us that do not have premature babies. I knew that part of the risk was not a problem for us. I knew my body could handle it and each week I didn't deliver was a blessing in Charlottes life.
We go do CHOP for our 1 year Eval in May. I can't wait to show off our little Charlotte Bee.
And what a blessing this is for all those moms out there that there is a better option for those SB kids. I hope that the option doctors give now is not termination it's prenatal surgery!