Saturday, October 30, 2010
Monday, October 25, 2010
She really likes the swing too, can't you tell by the look on her face.
Weight 16.9 lbs - 65%
Wednesday, October 20, 2010
Wednesday, October 13, 2010
THis was such a fun family fun day! I'm so glad I got the two free tickets otherwise we wouldn't have made it do this fun fall festival. I would love to go back as we didn't even get to see the whole thing. There was a huge volcano that we didn't get too.
Enjoy our family film! Starring Kathryn Olivia Weir and Music by Jeremy Nicoll!
Tuesday, October 12, 2010
On our walks to find some good caterpillars on the Milk Weed we came across this little guy, looks like he's wearing a sweater!
And this HUGE Caterpillar. I couldn't believe the size and how fast this big guy was. My friend called this the Komodo Caterpillar.
Here are just a few video of the cute girls I have! CHarlotte laughing and playing with her toys and Kathryn learning new tricks and dancing! I hope you enjoy!
Charlotte has the greatest laugh! I love it when we can get her going!
Kathryn learned this the other day. She's starting or has been jealous of my play time with CHarlotte on the floor so she has to climb all over me and has now learned she can do flips off my bum. I think this is funny and yes I'm secure enough to show my big bum on film!
Monday, October 11, 2010
I came across this blog post that I'm going to put here that puts into words what I feel should be what Awareness should be. two things. #1 women of child bearing years should be taking a folic acid all the time, not just when trying for a baby, most births are unplanned anyway, and #2 That if you are one of the 1 in 1000 that happen to find out you are going to have a baby with Spina Bifida that when the Doctor gives you the choice of termination, that you will laugh and say why would I do such a thing to a child that is going to knock your socks off with the things he's going to do to beat 'your' odds! Charlotte is perfect, yeah so what if I have to cath her 5 times a day and I have to make sure her head doesn't start to swell or that she's not as strong as the average 5 month old but she can smile and laugh and likes it when her sister plays with her. She brings such a joy into our family I wouldn't want it any other way. I gave her all I could to make sure she could have the best quality of life and now I'm doing all I can to keep up with that! I really believe she will lack for nothing in regards to happiness and a FULL LIFE!
This post came from Choo Choo's and Tutu's, Nate the greats mom! For the full post with pictures click HERE
For the last week, I've been thinking I need to write something about October being Spina Bifida Awareness Month, but I've just been mulling this around in my head. I'm always asking myself and others "What's the point?" What is the goal of this SBAK class we're doing? What do we want to accomplish with this mailing? What outcomes do we want to see from this event? And that's what I've been struggling with: What's the point of Spina Bifida Awareness month?I've never completely understood awareness ribbons. Breast cancer awareness--Who is NOT aware that breast cancer exists now? What's the real purpose? To me, it seems the purpose is to make us women aware that we need to do self breast exams and get checked out by our docs from time to time. Okay, that's a worthy goal, but is that the clear message we hear this month? And Autism ... well, the awareness campaigns have been pretty successful, I guess. Every time I see one of those puzzle clings on someone's car, I see another person affected. But again, what is the point of this awareness?
Every now and then I see a Spina Bifida Awareness ribbon or car cling, and I've actually never been a fan. To me, that just says, "Hey! Look at me! My kid has Spina Bifida!" So? Is that what I want everyone who passes my car to know about me and my kid? How does that help anything? (To be fair, probably the only reason I don't have one of those ribbons on my car is because they're not easy to find. I wouldn't go online looking for one to order, but if someone was selling them in front of me, I'm sure I'd buy one.) I have bought a bracelet that says "Spina Bifida Awareness--Hope." And I've just bought some awesome T-shirts that say "Redefining Spina Bifida." Those are clearer messages to me. (Okay, it's totally becoming apparent that I was a communications major.)So tonight I finally sorted it out in my head. For me, there are two great things that can come from Spina Bifida Awareness Month. For others there might be other goals, such as advocacy for their children.
But these are the two that stand out to me:1. To make all women of childbearing age *aware* that they need to be taking their vitamins BEFORE getting pregnant. And since about half of all pregnancies are unplanned (60% in Kentucky, fyi), that means all of us should be taking a multivitamin or prenatal to help prevent birth defects by up to 70%. (Preaching to myself here too.) Some people say they eat a healthy diet, so that's good enough. Uh-uh. Did you know you'd have to eat 14 cups of broccoli, or drink 8 cups of orange juice, or eat 200 medium red apples EVERY DAY to get enough folic acid? Honey, just take the pill and get it over with.I'm going to be honest, I know this is an important goal simply because most people really are unaware, but this has never been my fire. I do work health fairs and explain all this to women, but it's sort of beside the point for me. And I know it's because I was taking 1mg of folic acid 4 months prior to getting pregnant, and it still happened. I also know it happened for a reason.
2. The other goal I see as important for SB Awareness Month is to let women know that if they find out their unborn baby has Spina Bifida, there is no reason to terminate that pregnancy. This is my fire.I totally understand that overwhelming fear, because I was there too. I also wished the "problem" would just go away. I also got bad news ... The most severe form of Spina Bifida. L2--higher than average. Arnold Chiari Malformation and hydrocephalus. It was terrifying. I chose to trust God. I knew He doesn't make mistakes, and if He gave this child to me, He was going to help me raise him. And I don't want to sound like a crazy person, but He told me so. I heard Him. Not audibly, but very clearly.And this is what I got:
A handsome! ...
Did I mention train-loving? He really, really loves trains ...
Daddy's boy ...
totally adored ...
musically gifted (That's right, I said it! He's gifted!) ...
Does that look like a boy who has a poor quality of life to you? Does he look sad, or sick, or disabled?
Some might say, "Well, sure, but he's an exception." No, not really. It's true--Nate does not have a whole lot of medical issues. I know some kids who have fewer issues than Nate, and some who have more. But you know what? I think all of us think our kid is the exception. We all consider our kids miracles, and they ARE because we gave them the chance to be. Not because we're any braver or stronger or more patient or better parents than anyone else, but only by the grace of God.
Another superwomen of a mom of the cutest little boy is doing an awesome awareness feature on her blog. She is featuring a different kid with Spina Bifida each day of the month. And she got such good feed back she's now featuring two kids a month. Charlotte was featured on October 9th. Please please check out her blog http://themclellands.blogspot.com/ and see all these precious kids all thriving and living life to the fullest, and knocking the socks off of all their doctors! Here's the link for just Charlotte . You'll get sucked in with finding more about all these wonderful kids. I sure do. I have to limit my time with each one!
Monday, October 4, 2010
I LOVE this SMILE. I get it all the time!
She really loves her bath time too!
The dreaded tummy time! She's doing good but it still makes her mad after a little bit.
Saturday, October 2, 2010
Yes she's wearing her panties. She has some good days and some bad days. Still a diaper girl though. I think she likes the novelty of wearing panties just not the responsiblity behind it. She said today after peeing on the floor that she would have missed Boo! if she had gone to the bathroom. Boo! is her favorite cartoon.
No there are not 30 candles but they are in the shape of a 3 and 0. Kathryn had fun telling me Happy Birthday all day.
For my birthday as well Jolene took us to the Mall and Got me a pedicure while she watched the kids play at the kids play ground at the mall. Kathryn got all upset so I had her come sit by me and she got a chair message and they even painted her toes. I think she's hooked. Do you think I started her a little to young for this kind of thing? I didn't get my first pedicure till I was in my 20's.
The Ceiling of the Center dome!
Here is the tour backwards. We ended at the White House. or Yellow house. Matthew says its because of my shirt that the white house is yellow! ha ha
Vietnam Memorial. I love this memorial. I think it's because my dad could have been called into this war but didn't. He has many friends that are on this wall.
Matthew had me run up the stops of the Jefferson Memorial and he sang the rocky song. He's so silly! but we sure have fun.