Spina Bifida

I should have known something could be wrong as you never should have to go to another office for an ultra sound. I didn't think anything of it. I was just excited to get video of this one. I was hoping for some 3d images too. The only one I got was of the defect in our little girl.

Baby girl #2 has Spina Bifida. Spina bifida can adversely affect many body systems including the nervous system, the bones and muscles as well as the kidneys and bladder.

We were told that the opening was low so that is a good sign. There is a clinical trial that we will most likely try to be apart of to be either one to have Prenatal surgery to close up the hole. Or be part of the post surgery trial. They have 3 locations for this. San Fransisco, Philadelphia and Nashville.

This sort of changes my plans of leaving for Virginia because if I get chosen for the prenatal surgery It has to be done by the 25th week and I have to stay at the center until delivery at 37 weeks.

I've read about this and have lots of emotions going on right now. My parents have some friends that have a son with this and he's married and has a job but has had a lot of surgery's and has to have leg braces and wear a catheter and diaper all the time. I know it's going to be a difficult ride but I'm positive that we are going to be stronger for this. I'm so grateful for Kathryn. I'm sure she is going to be a great big sister and be able to help out as they grow up together.

If any of you have information or know someone close to you who has this I would like to talk with them or find some kind of support group to learn more about this.

Thanks for all your love and support.